Undiagnosed Conditions

[kozseluham]

I have been seeing a urologist for almost a year know. Originally I had some prostatitis which went away. However, after doing a Uroflow test followed by a bladder ultrasound scan it was discovered that I was retaining over 250ml in my bladder after emptying. Subsequent tests showing that the condition has worsened to the point where I am now retaining 700 ml which is well above what the average bladder holds. I now have to self-catheterize. I have been on Flomax for 6 months which hasn't helped. I had a cystostapy done to rule out prostate and bladder cancer When the camera was being pulled out during the cystoscapy the bladder muscle spasmed made made it difficult ( and very painful ) for the camera to be removed. This also happens when I remove the catheter. My urologist says that I have a very narrow bladder neck and that my bladder is atonic.
For some background infrmation I was training last year for the CN Tower stair climb which is 144 floors of stairs. I have done this in the 2 previous years with no problems. What I did different this time in my training was the use of ankle weights to build up extra strength. I went to see an Osteopath who determined that I have some scar tissue around my bladder and my Inginal ligament, hip flexor and psoas muscle are very tight on the left side and she believes that this is causing th bladder to be pulled down thereby making the bladder neck smaller. The reason the left side is tighter is that in my training I always went up the same starewell always turning right, therefore my left leg had to lift the ankle weight alot more than the right one.
Does anybody have any thoughts on this ???

P.s My chiropractor is doing accupunture on the groin area to loosen up the Psoas muscle.
I am also going for massage and my Osteopath also is working on loosening the bladder from the scar tissue.

[chell]

l am no expert at all, just based on my own personal experience is that when l get bladder infections the scar tissue builds up, so maybe at the sites that you are mentioning the tissue is built up with more tissue that seems to close up and has to be broken through again everytime you self catheterize, etc.
Possibly a small cut on the left hand side might loosen the skin so it won't be so tight and ease up on the tension so it can release the urine and also some of the pain that you are feeling.

l just went through a problem that l thought was caused by a fall and being only in my hips and legs and one thing l was told was that if l stopped having the urge or stopped urinating , to get to the ER immediately, and l went almost 2 days without going and did not realize how long it had been, and then when l got to the hospital it was almost 2 bags of urine they emptied and it was not coming from my back or legs, but from the frontal lobe of my brain that sends out the signals, so l am going through tests at the moment to find out exactly what happened as it seems to have been just a one time thing, but to find out what caused it so it does not happen again or what is blocking the nerves is what l am going for now.

l do wish you luck, Chelle

[kozseluham]

Thanks for sharing your experience with me. I hope you're doing better now. I do get the urge to pee but only when the bladder is at about 600 or 700 ml's.

[chell]

No, it is a bit better, but l still can sit in the bathroom with the urge to go for hours, so what l do now, is sit there and after about 20 min. or so, l get up and just wait until the bladder is really full and then it empties somewhat, but like your Dr. did, at the Hospital, they catheterized me after l went and saw how much was left over, so in that respect we have the same problem, l am going next week and the Dr. is going to show me how to catheterize myself.
l sit here and wonder how this all got to be this way, l got a herniated disc and my back went out, my legs have been really screwed up, then with the dye injection to see what is going on with my head, l have had nothing but problems with my neck and shoulders and then the bladder and best of all, losing the bowels, without even a sign that it was happening until it was over and done. (That has happened while l was sleeping and another making breakfast for my daughter and that sure put a quick end to breakfast. So it is all typical of nerve damage but they cannot find where the nerve damage is, that is the fun part. Test after test and at 45, l am slowly becoming less independant as the pain keeps getting worse in different spots each day when l get up.

l really hope for you that you can get treated for this and that is the end of the problems because l would hate to hear of someone else having this. Well, bye for now and keep me posted how it goes for you, Michelle